My Sweet Baby, Kyle

Okay, so here's the full Kyle story. Monday, the babies and I dropped JR off at VBS at 2nd Baptist (main campus). We stayed on the 5th floor for a little while so they could play on the "soul train", so it was about 9:15 AM when we walked out the main door. I was carrying Reed, and Kyle was walking, holding my hand. All of a sudden he started acting like he couldn't walk. I looked down and said, "What's wrong, Baby?" and he continued to fall and stumble. I picked him up, (putting Reed down) and he went limp on me. He just doubled over like he couldn't support his body. I walked inside the next door and an older lady and man were standing there talking. She looked at me and said, "Are you okay?" I said, "No, I think there's something wrong with my baby." She came over and when we looked at Kyle his eyes were twitching back and forth in his head. I think it was then I started saying, "Come on, Baby! Don't do this to me, Kyle!" The eyes were enough to scare the lady and she said, "I'll go get the nurse!" and ran off. By the time she returned with the nurse (and a muffin and a glass of water) Kyle was back to normal, and even wanting the water and muffin. The nurse said, "Take him to the emergency room, there's a St. Luke's right over there on San Felipe." The nurse helped me to the car with the babies and off I went. We literally drove around the corner to the St. Luke's Emergency Clinic and walked right in. There was nobody in the waiting room and they took us right back to the examination room, they did blood work and gave him a CT scan (yes, a CT scan right there at the emergency clinic!) So let me stop for here to give my praise report, and show how God's hand was in all of this so far:

1. Kyle was walking when it happened. If I had used my stroller, I would have never even known it had happened since he would have recovered before I got to the car.

2. We were in Houston, at 2nd Baptist, less than a mile from a fabulous ER clinic. We could have easily been at my parents' house, 30 minutes from a hospital with a "questionable reputation" to put it nicely

3. I was alone. You wouldn't even have known it was me I stayed so calm. Even the nurse at 2nd Baptist commented on how calm I was staying. If Jason had been with me, I totally would have fallen apart...since I basically would have expected him to make Kyle stop.

4. St. Luke's Emergency Clinic is amazing. Having a CT scan right there on site was priceless.

5. 2nd Baptist couldn't have been more helpful. The nurse told me she would bring JR to me after VBS, they sent a pastor to the ER to check on us, and the Children's Minister called last night to check on us again.

6. I left the house that morning without their diaper bag thinking I would return in 15 minutes. Let's just say it was a true miracle I didn't have to change any diapers until I got home that afternoon.

Okay, so back to story...In the ER, Kyle was still acting perfectly normal. In fact, Reed was in one of his clingy moods so I had to keep telling the nurses and doctors, "No, the patient is the one running around the room." He so didn't like the blood work (they couldn't find a vein on him...just like me), but thought the bandages were pretty cool. Look how cute and sweet he is!

Reed missed the blood work hysterics since he was off with cute nurses enjoying a popsicle. After blood work we went back for the CT scan. I was worried he wouldn't be still (and none of us wanted to have to sedate him), and as we laid him down in CT machine I prayed that God would send His Angels to hold Kyle still in their arms. Oh how sweet little Kyle looked lying there. He just laid perfectly still sucking on his pacifier as the machine moved back and forth, it was like he was enjoying a ride at Fiesta Texas...or Angel arms! We had to wait about an hour for the results as Texas Children's read them. I really believed they were going to come in and say nothing was wrong, so I was quite shocked when the doctor said they had found "something".

Now yesterday the words "tumor" and "brain" were said to me in the same sentence. The doctor also said things like "don't worry, this doesn't require radiation or chemotherapy." Okay, so I had kept it together long enough. Needless to say, I lost it when I got in the car. I went back to Jason's dad's house to basically stare at the wall and wait for the doctor to call me back after she had talked to the pediatric neurologist. After talking to the neurologist, they say he has an "arachnoid cyst", and the neurologist said that the cyst is so small he doesn't even think that's what caused the seizure. Which is kind of good news/bad news...so if it didn't cause it, what did? So this morning I went back by the ER to get a referral so we can take Kyle to a neurologist in Albuquerque (Texas Children's is a minimum 6 week wait). FYI: ER doctors don't write referrals...which I didn't know. Luckily, our Houston pediatrician was able to see him this morning. After looking at the CT scan she also agreed that the cyst probably didn't cause the seizure. Although she said that it's location might have caused it, but the size, no. She also said that these cysts are totally common and that if we did CT scans of everybody tons of people would have them. She also validated my feelings saying, "I would be worried sick if it was my kid, even though as a doctor I know better." She seemed to agree with the specialist that the cyst is tiny, but we do need to see a specialist and have an MRI just to check everything out.

So to wrap up, I feel good about everything. Of course I'm nervous, but feel better about the cyst after talking to the 2 doctors...although why he had the seizure is still a concern. You'd actually never know anything was wrong with Kyle. Yesterday, after we got home, he was quite content carrying around 2 purses and wearing 3 sets of Mardi Gras.

I want to thank all of you for your prayers, kind words, and support. The Lord's hand is definitely upon Kyle, and was certainly with us on Monday. It will probably take us awhile to get in to to see the neurologist, but I will certainly keep you updated.